Prasanna Shirol

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Prasanna Kumar Shirol is president of the Lysosomal Storage Disorder Support Society and also father to a 12-year-old patient with Pompe disease

Stories from Prasanna Shirol

rare
Extraordinary measures, a rare case scenario
Prasanna Shirol

Families of children with rare diseases face daily hardships because unlike in the West, Indian government has no policy to offer them affordable treatment

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